Saturday, Mar 28, 2015

Race for R.A.R.E.

1101 Lowell-Spencer Mountain Road

Gastonia, NC 5K, 10 Miler, 50K, Volunteer

This Event Took Place Sat. Mar 28, 2015

REGISTRATION

ONLINE REGISTRATION IS NOW CLOSED. YOU CAN SIGN UP FOR THE 5K OR 10 MILE ON RACE DAY OR AT WALK AND RUN BELMONT 3/27 FROM 10-6:30 (PLEASE EMAIL RACEFORRARE@YAHOO.COM FOR THE 50K) 200 N. Main Street Belmont NC

The course

The course is mostly single track trail, with the exception of a short (approx .25 mile) paved section at the start and finish. Be prepared for dirt, rocks, roots, mud, and nature galore!

Trail Description

Situated on the edge of the 1250ft Spencer Mountain in Lowell, NC is the terrain-fest known as Poston. The trail is deceptively challenging and arguably the biggest cardio challenge in the Charlotte region. There is more elevation change per mile than any other local trail. The topography has few flat areas so you are always either ascending or descending! Lot of benched hillside trail, plenty of twists, and nice singletrack! Poston offers nice challenges for all levels of runners as we’re always sure to think about the advanced crowd as much as we are the beginner. Beyond the trail layout and features the woods themselves are a real jewel. Multiple creek crossings, mature forest, lake views, sections of thick laurel that temporarily transports you to the Appalachians, and the significantly rare large leaf magnolia – Poston is more than just a trail, as these extraordinary woods provide a truly unique experience among the local trails.

What is R.A.R.E

Race for R.A.R.E. raises money and awareness for the rare disease community. Rare disease is, ironicially, not so rare. There are approximately 7000 known rare diseases, affecting nearly 30 million people in the US. Approximately 50% of those affected are children. 1 in 10 Americans are affected by a rare disease*.
Rare diseases are often under researched, under funded, and unrecognized by insurance companies and children do not get proper treatment or therapies. Policy development is needed to help promote education and treatment of rare disease.

Race for rare is hosted by Jog for JoubertSyndrome (J4JS), a fund raising campaign benefiting the Joubert Syndrome and Related Disorders Foundation (JSRDF). Race for Rare raises awareness for the entire rare disease community and will specifically benefit the rare disease Joubert Syndrome(JS). JS is a rare neurological disorder estimated to affect approximately 1:100,000 (roughly 3,100) people in the US (but does not reflect confirmed cases)**.

JS has a wide range of effects including, decreased muscle tone, difficulties with coordination, abnormal eye movements, abnormal breathing pattern and cognitive impairment. It can also involve the kidneys and liver and can become fatal if those body systems are affected. 100% of the proceeds benefit the Joubert Syndrome and Related Disorders Foundation.

Event's current local time: 7:59 PM ET

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