Inspiration for the “Seeing is Believing” Charity Race
Anthony was diagnosed with Leber’s Congenital Amaurosis (LCA) at 3 ½ months of age. Leber’s Congenital Amaurosis (LCA) is a very rare, genetic hereditary disorder that causes severe vision loss and blindness in infants and children. Like most parents would be, we were devastated when we received the diagnosis. However, with strong support from family and friends, we redirected the initial feelings of devastation towards the positive. We were determined to tackle the disease “head on” and provide Anthony with all the tools he would need to succeed.
Local time: 5:22 AM
There are approximately 18 known genes that have been identified to cause LCA. There is no known cure for LCA. However, medical science has made great strides in recent years utilizing gene therapy. Clinical trials have been successful in restoring some vision in some clinical trial patients. This is a very critical and exciting time with research, in regards to LCA. Sooner rather than later, there may be a cure. With events like ours, helping to provide funding for trials and research, a cure may come sooner than we think! For more information about LCA go to The Foundation For Retinal Research www.tfrr.org .
Our charity event will occur February 1, 2014 and will be a great family fun event In addition to both a 5k and 10k race, we plan to promote a family walk and will work to engage the entire family for this fun event.
In addition to gaining awareness for LCA, we will also have a number of activities such as a raffle, breakfast, and music for the entire family.